Dear Business Owners-
We are having our 4th Annual Golf Outing on
Thursday, June 7, 2018 at Bay Hills Golf Club.
Please consider being a sponsor for our event. We are raising funds for Glycogen Storage Disease 1B. It is a very rare liver disease that receives no government funding and can be fatal. Ellie receives around the clock care, drinks uncooked cornstarch and spends a lot of time at doctors and hospitals.
In recent months, we have lost several children to this horrible disease. This can be cured and we are fighting hard with this fundraiser to help fund Gene Therapy Trials at NIH. And the New GSD Global Center at UConn Children’s Hospital!!!!!
We thank you for your continued support for Ellie and others suffering from this rare disease. We hope to see you on June 7, 2018!
~ Efforts 4 Ellie
Please make all checks out to:
Efforts 4 Ellie
P.O. Box 459
Gambrills, MD 21054