syndrome (4)

U did it!
U did it!

This is a work in progress about autism.  The perspective is from the real world view.

I want to hear from you what should go into a book from a real world perspective.

Also, I would appreciate letting me interview you.  I know you may think you are not a professional.

However, you may know more than you think.  Have you ever gotten rotten advice from professional

experts?   I am not here to bash all experts.  Yet, I want to hear from the people on the frontlines that

may often be overlooked.  By doing this, I feel we can have a better understanding that some fail to do so

by leaving stones unturned.

I need to let my readers know I might be changing my working business name to ARM, Autism

Resource Management.  Tell me what you think.  You may leave comments here or on my facebook page

at www.facebook.com/Tell.It.Once.4Autism.

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Ultimate N Autism!

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Ah in autism,                                                                                                                                                                                       Ultimate expression,                                                                                                                                                                                  Whether being an Einstein physicist,                                                                                                                                                             Or equisite artist in self mode reflection!

Autism modes                                                                                                                                                                                                 have different codes!                                                                                                                                                                                     It can be art                                                                                                                                                                                                Or poet!

Most just don't get                                                                                                                                                                                         Or havea key!                                                                                                                                                                                       Uproar n plenty,                                                                                                                                                                                 Because of low affinity.

Most ignore                                                                                                                                                                                           Natures beauty                                                                                                                                                                                             unless in their preferred                                                                                                                                                                     Absolute form!

Open your eyes.                                                                                                                                                                                   Blessed thy                                                                                                                                                                                                   Will be                                                                                                                                                                                                         1000 fold from autism.

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4063836722?profile=originalPlease do not be put off by the poetry.  I put this in as a thought provoking exercise. Explore all the things that might affect autism.  Then after you read the poem go to the NIH Sites and get free publications that explain all the poem touches on. Autism, like cancer, has so many threads and variables it is impossible to find one specific cause.  That is why we must explore all threads.

4063836807?profile=original

Autism? Simple answers? No! Here is
Sandra’s try at an explanation.

Autism has good graces.
Visit upon us to bless upon.

Doesn’t mean one shouldn’t ask,
“Why? What? When? Where and how?”

God could have intended
You being intentioned in the unhinging of the process.

Vaccination’s that is the key!
Say many with adamation!

I agree for them it could be,
A factor, insult that hit on.

Pharmacist in me says, the study was too small to make it a hallmark.
Flip the coin, drug makers threw around money, plus shouted out!!

Next, a group says environment
Causes problems no doubt.

Environmental insult.
Yep, that is why my child is shut into autism.

Remember here, environmental can be
From chemicals & diseases stalking inside to make their stand.

From, things like maybe Grandpa’s Agent Orange,
To a baby’s hospital stay due to RSV!

May yet wave
The Genetics Flag.

Throw into this mix, I will; smaller families, often an only child
That insists to be totally plugged into away from others.

Oh, how simple it would be
One answer, if could only twas or could be.

Yet, still I want to pose
Older parents, sperms and eggs as a contribution variable.

Not a reason not to conceive!
But to be aware more defects, mutations with age do occur.

Can one really say,
One cause is for autism?

Look at cancer! Common threads
There, still many different scenarios.

Genetics predispose, environmental assaults,
Turns on gene with a society that is ripe in culture and age of parents?

Yet, it matters!
No, it doesn’t matter!

Sound so crazy?
Yes, to help. No because we love and deal with it no matter what!

We learn what can and must be done.
But better realize the blame game must stop.

One answer might be cause in 1% of cases ( just me thinking),
Reality is autism is complex.

Complex, autism really is!
Yet, then is simple too.

Reaching out is what I want to do.
Remember right answers lead to correct therapy n treatments!

Wrong guesses and blame may only
Lead to burying data and wrong wizardly haphazard disasters.

Science, true keeps an open mind!
God is the first and Ultimate Scientist.

Together are we able
To do and can do n be our best.

In some ways the riddle of autism
Is not to be solved!

God means us to be
Who we are as he made us!

Change is something
All of us must do.

Adapting to you and others
Is being kind.

Let us not get behind
Stay in the forefront.

Doing out best to unlock the riddle
As much in prayer; God intends us to do!

I am sure by helping
We learn God’s lessons.

Helping those with autism
I bet could be a society improvement, God intends us to do.

No answer complete do I have;
Except my son is a blessing some may say in disguise!
God we will accept your answers.
Thank you God! Amen!

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This post will not be long.  First, let me give you this site url in case you choose to read no futher.  You can wander around and see what is important to you.

http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-pervasive-developmental-disorders/index.shtml#part8

This site is marvelous at giving basic information on autism.  There is a free "Parent's Guide to Autism Spectrum Disorder's."

On the site you will find headings listed below;

  • What is Autism Spectrum Disorder?
  • Causes
  • Signs and Symptoms
  • Who is At Risk
  • Diagnosis
  • Treatments
  • Living With
  • Clinical Trials

There are more publications, plus they are available in spanish.  

I hope this is helpful; my goal is to inform with correct information.  There is so much misinformation out there.

4063836758?profile=originalGo Check out the government information     

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Are you the Asshole Marie describes in her book?  The type of person that makes raising a child with blindness, autism, both, other disability and/or multiple disabilities worse?  "I am just writing truths and opinions about my life, my own experience , and my own feelings concerning caring for my own son." States Marie Duke in Autism and Assholes the book she wrote.

While the title seemed extreme to me at first; after reading the book I agree the title fits her walk in the realm of disability child rearing/raising. A reader that wants to read a story on heroism, is a newbie parent to the realm of disability child rearing and people involved in providing services to children with disabilities might want to consider this to be put on the top of their reading list.

I haven't excused the general public yet.  People that want a peek to see what it is on the inside of this world should read it before they stick their nose in other's business.    "You should put him in a home," is a sentence Marie heard.  I also as a mother of a child with autism heard this very same sentence spoken to me be by experts.

One child developmental specialist Wanda Draper, that has a redo of her book, "Your Child is Smarter Than You Think," was the only one to say anything about the importance of the parents.  She remains positive about the children.

Autism and Assholes is $11.99 in paper pack at Amazon and the Kindle is $6.99.   The ISBN is 149215887 and the ASIN is BOOEKRNW7.

I consider this a must read to gain insight into how little people understand the real world of disabilities.  How dare some tell us to put our children in a home so early in life.  This proved to be wrong for Marie and me.

A heart wrenching story that will give you the understanding she deserves.  You may take offense at the title but after reading it, I promise you will want to call her up and offer a heartfelt apology.

This isn't the normal book review.  I don't want to take away from the story.  I mainly wanted to explain and tell you why to read the book.  Marie in my opinion was too nice to the people that provided services to her son.

http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=autism%20and%20assholes&sprefix=autis%2Caps&rh=i%3Aaps%2Ck%3Aautism%20and%20assholes

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